WebSites For More Information:
The Registry encourages readers to review these sites and discuss these topics in further detail with your medical providers. The Registry is not responsible for the quality of information provided at external sites.

Iowa

Iowa Registry for Congenital and Inherited Disorders
http://www.public-health.uiowa.edu/ircid

University of Iowa and University of Iowa Health Care

http://www.medicine.uiowa.edu/

http://www.public-health.uiowa.edu/

http://www.uihealthcare.com/depts/indexfull.html

http://www.uihealthcare.com/depts/med/pediatrics/welcome/index.html

http://www.uihealthcare.com/news/news/2000/09/0925marchdimes.html

http://www.uihealthcare.com/topics/childhealthdevelopment/catchil.html

http://www.uihealthcare.com/topics/pregnancyandchildbirth/catpreg.html

http://www.uihealthcare.com/topics/geneticsbirthdefects/catgene.html

Children's Miracle Network:IOWA
http://www.uihealthcare.com/depts/childrensmiraclenetwork/index.html

Virtual Hospital
http://www.vh.org

Iowa Department of Public Health
http://www.idph.state.ia.us

State Department of Education:
Special Education
http://www.state.ia.us/educate

State Agency for the Visually Impaired
http://www.blind.state.ia.us

Autism Society of IA
http://www.autismia.org

Brain Injury Association of IA
http://www.biaia.org

Epilepsy Foundation
http://www.efa.org

Arc of Iowa (Persons with Mental Retardation)
http://www.thearc.org

Spina Bifida Association of America
http://www.sbaa.org

Technology-Related Assistance
http://www.uiowa.edu/infotech/

Iowa Compass (information and referral services)
http://www.medicine.uiowa.edu/iowacompass

Healthy Families Information and Referral Services
1-800-369- BABY

United States

Alliance of Genetic Support Groups
http://www.geneticalliance.org

American Academy of Pediatrics
http://www.aap.org

Child Statistics
http://www.childstats.gov

Cleft Palate Support, Research and Prevention
http://www.cleft.net

GeneClinics
http://www.geneclinics.org

HuGE Net
http://www.cdc.gov/genetics/hugenet

International Clearinghouse for Birth Defects Monitoring Systems
http://www.icbd.org

National Association for the Education of Young Children
http://www.naeyc.org

KidNeeds.com (information and resource center)
http://www.kidneeds.com

March of Dimes
http://www.modimes.org

National Birth Defects Prevention Network
http://www.nbdpn.org/NBDPN

National Center for Biotechnology Information Online
Mendelian Inheritance in Man (OMIM)
http://www.ncbi.nlm.nih.gov/Omim

National Institute of Health
http://www.nih.gov

National Organization for Rare Disorders (NORD)
http://www.rarediseases.org

National Society of Genetic Counselors
http://www.nsgc.org

Pediatric Database
http://www.icondata.com/health/pedbase/pedlynx.htm

Phenylketonuria Organization
http://www.pkunews.org

Teratology Society
http://www.teratology.org

The Birth Defects Foundation
http://www.birthdefects.co.uk/

Birth Defect Research for Children, Inc.
http://www.birthdefects.org/

Birth Defects Prevention Legislation Committee
http://www.birthdefectsprevention.org

National Organization on Fetal Alcohol Syndrome
http://www.nofas.org

National Information Center for Children and Youth with Disabilities
http://www.nichcy.org

Family Village: Information Center sponsored in part by U. of Wisconsin
http://www.familyvillage.wisc.edu/index.htmlx (click on library)